Trusted Resources: People & Places
Online groups, photo galleries and blogs
Children with rare diseases are racing the clock from the moment they’re born. Imagine hearing the news as a parent that your child has a disease that will end their life in only a few short years. Now imagine being told little research for the disease exists because it wouldn’t generate enough profit for a drug company to pursue. It’s a literal race against time for your child, and disease has a huge head start. How do you get your child out of what seems a hopeless situation in a world where no one is even looking for a cure?
The Ryan Foundation exists to find, then fund researchers with novel science that can lead to actual treatment of Rare Disease; with a specific emphasis on Mucopolysaccharidosis (MPS) and other Lysosomal Storage Disease (LSD). The Ryan Foundation works hand-in-hand with National and State legislators to build a stronger partnership between government, research science, and the individuals and families living life with MPS and all Rare Disease. The goal of the Ryan Foundation is to secure a better future for both the families living with the pain of Rare Diseases today as well as tomorrow’s generations.
BookmarkRelated Content
-
Terri L. Klein Received the WORLDSymposium 2021 Patient Advocate Leader (PAL) AwardTerri is a founding member of the Mucoli...
-
Experimental MPS 1 Therapy Shows Biomarker Activity, Improved FunctionREGENXBIO presented results from its ong...
-
Canadian MPS Society – InstagramCanadian MPS Society is a nonprofit orga...
-
CHOP – Lysosomal Storage Disease (LSD) CenterThe Lysosomal Storage Disease Center at ...
-
Angle-Closure Glaucoma With Attenuated Mucopolysaccharidosis Type I in a Chinese FamilyMPS I is a metabolic disease that involv...
-
National MPS Society – FacebookNational MPS Society is a nonprofit orga...
-
MPS Society UKThe MPS Society provides support across ...
