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MPS Society UK

MPS Society UK

MPS House
Repton Place, White Lion Road
Amersham, Buckinghamshire, United Kingdom
Email   Phone   Web  

The MPS Society provides support across the UK to families affected by rare, life-limiting genetic conditions. These genetic conditions cause a range of complex difficulties and we provide vital support to the whole family for as long as they need it.  We want all affected children and adults to know where to turn for specialist knowledge, support and advice and reach over 1,500 people per year. We are here to ensure we can offer support in a way it is most needed from a family with a newly diagnosed child through to adulthood and beyond. 

The MPS Society focuses on funding and collaborating on innovative, world-class research that can make a positive impact on those affected by these conditions. We raise awareness of these conditions as we want all families to receive the fastest possible diagnosis so they can start receiving treatment and support as soon as possible. We aim to champion new and existing therapies. There is no cure for MPS, Fabry and related diseases but with each new advancement in treatment, we help to ensure that lives are lived to the fullest. The MPS Society UK is the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

 

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