DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneMPSvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: News & Meetings
Latest announcements and gatherings
Fall Family Fundraising
Last year, we initiated our annual Fall Families Fundraising asking you to reach out to your families and friends to donate to the ML4 Foundation to support the research we conduct. MLIV research is a multimillion-dollar enterprise, and we cannot do this work without your help. We run this campaign from October 15-November 30 each year. In our first year, participating families collectively raised $60,850 for the ML4 Foundation which went to support gene therapy research at Massachusetts General Hospital. This was terrific and inspiring to us and to the researchers!
It’s time again for Fall Family Fundraising and we are excited for more families to join and for more giving. Again, here is what we know from donation research:
• People want to give to organizations engaged in purposeful work;
• People want to give to support your situation;
• People will give when asked for specific reasons.
Related Content
-
news & meetingsYork Hob Moor Oaks School Boy Battles Hunter SyndromeThe family of a nine-year-old York boy a...
-
Community CenterJourney Assistance ProgramProgram offers assistance grants to help...
-
Community CenterNational MPS Society – TwitterNational MPS Society is a nonprofit orga...
-
news & meetingsRaleigh Run for RareThe National MPS Society will host a tim...
-
news & meetings36th Annual Family Conference: Nashville, TNSave the date for our 36th Annual Family...
-
Community CenterZayd, Living With Hunter SyndromeZayd is a funny, smart, and talented 23-...
-
Community CenterCure Mucolipidosis – InstagramCure Mucolipidosis is a non-profit organ...
send a message
Reset password
password changed successfully!
please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent
a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent
an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.
If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!
Log in
This feature is only available to members.
you haven't confirmed your email address yet. resend confirmation email
Want to find the info you need faster?
The symptoms of Mucopolysaccharidosis and the treatments that are available vary depending on which type of Mucopolysaccharidosis a patient has been diagnosed with. Select which type you want to learn more about, and can highlight the resources that are most relevant to your MPS/ML type.
Not now