Trusted Resources: Community Center

Back to Community Center / Services And Support

The International Advocate for Glycoprotein Storage Diseases

ISMRD is an internationally focused not-for-profit organization whose mission is to advocate for families and patients affected by one of the following disorders.

• Alpha-Mannosidosis

• Aspartylglucosaminuria

• Beta-Mannosidosis

• Fucosidosis

• Galactosialidosis

• Sialidosis (Mucolipidosis I)

• Mucolipidosis II, II/III, III alpha/beta

• Mucolipidosis III Gamma

• Schindler Disease

These diseases are the ultra-orphans of the Lysosomal Storage Disease family, which encompass over 40 similar disorders, and currently have few treatments beyond symptomatic care. ISMRD’s advocacy efforts are not limited by borders, language, race or religion.

Source: https://www.ismrd.org/

Trusted Resources Home

Education

People & Places

News & Meetings

Videos & Visuals

The International Advocate for Glycoprotein Storage Diseases

Related Content

Powered by

rareLife solutions 606 Post Road East #397 Westport, CT 06880
You are receiving this because you have an account on www.oneMPSvoice.com
To unsubscribe from these emails, click here