About oneMPSvoice
Welcome to the oneMPSvoice community – a mucopolysaccharidosis (MPS) community tailored to you! oneMPSvoice was created to transform the health of those impacted by mucopolysaccharidosis through a collaborative digital platform that provides greater disease knowledge, emotional support and empowerment. oneMPSvoice has three unique features:
- The Social Wall message board is the heart of our community. Here you can share YOUR voice with MPS patients, advocates, and healthcare professionals. Introduce yourself, share what’s on your mind, or just check out the latest discussions.
- Trusted Resources compiles MPS-specific news, healthcare professionals, facilities, advocates, research, and resources from across the internet in one convenient location. Be sure to check out the latest events in the News & Meetings section.
- Clinical Trial Locator delivers a user-friendly way to find potential clinical trials that suit your specific needs
The data that are gathered through the oneMPSvoice platform are used only for feedback and analysis to make this community platform even better. The data are used in accordance with our privacy policy and will not be used by any other parties without first consent from our platform community. We hope you find the benefits of the oneMPSvoice platform helpful to you and your family.
Sincerely,
The oneMPSvoice Team
