Have you ever participated in a clinical trial?

Have you ever attempted to participate in a clinical trial but did not qualify?

Would you consider participating in a clinical trial in the future if you met the criteria?

How happy are you with your level of medical care?

Are you able to care for yourself or do you require assistance of a caregiver?

Do you think others outside of your close friends and family understand the challenges you face in your MPS disease journey?

Who is the person who has helped you most through your MPS disease or journey?

How much time do you spend per week researching, discussing, participating in social media, etc., related to MPS disease?

Has MPS disease ever interfered in your personal relationships?

Do you think you, or someone you know with MPS, has been bullied because of it?

Do you feel that managing your MPS experience has made you a stronger person?