Trusted Resources: People & Places
Online groups, photo galleries and blogs
Randy S. Gold
President The Mucolipidosis Type IV Foundation
1440 Spring Street NW
Atlanta, Georgia, United States
Randy S. Gold is President of the Board at The Mucolipidosis Type IV Foundation. Randy’s daughter was diagnosed with Mucoplipidosis Type IV when she was just eighteen months old. This incident left Randy and his wife, Eden, confused, heartbroken, and scared. As a result, they got involved in the only organization, the ML4 Foundation, which had ever been established to fight for treatments and a cure for this disease.
Shortly after Randy joined the Board of Directors of the ML4 Foundation in 2011, he worked with the board to create and fund the position of Executive Director for the Foundation. With this new professional funded and hired, board members have worked tirelessly to increase the visibility of the Foundation so they can achieve the goals of treatments and, ultimately, to cure ML4 for Eden, and for the all the other children with this horrible disease.
Related Content
-
MPS 1: Where Are We NowDr. Sandra Kingma from the Centre for Ra...
-
COVID-19 and MPS Patientshttps://www.youtube.com/watch?v=euwZ_vDW...
-
Elosulfase Alfa in the Treatment of Mucopolysaccharidosis Type IVA: Insights From the First Managed Access AgreementManaged access agreements provide a cruc...
-
Sanfilippo Ideal for FDA’s Accelerated Approval Pathway, Foundation SaysThe Cure Sanfilippo Foundation is encour...
-
Gene Therapy May Reverse Hurler Syndrome, a Rare and Severe Illness in KidsGene therapy might soon offer a new opti...
-
A Guide to Understanding MPS II (Hunter Syndrome)MPS II belongs to a group of inherited m...
-
Expanding the Phenotype of Mucopolysaccharidosis Type II RetinopathyPurpose: To report novel retinal finding...